# ‘A sword of Damocles’: patient and caregiver beliefs, attitudes and perspectives on presymptomatic testing for autosomal dominant polycystic kidney disease: a focus group study

**Type:** Papers  
**Canonical URL:** https://scholariq.org/papers/a-sword-of-damocles-patient-and-caregiver-beliefs-attitudes-and-perspectives-on/

## Facts

| Field | Value |
| --- | --- |
| Author Names | Charlotte Logeman,Yeoungjee Cho,Bénédicte Sautenet,Gopala K. Rangan,Talia Gutman,Jonathan C. Craig,Albert Ong,Arlene B. Chapman,Curie Ahn,Helen Coolican,Juliana Tze‐Wah Kao,Ron T. Gansevoort,Ronald D. Perrone,Tess Harris,Vicente E. Torres,Kevin Fowler,York Pei,Peter G. Kerr,Jessica Ryan,David W. Johnson,Andrea K. Viecelli,C. Geneste,Hyunsuk Kim,Yaerim Kim,Martin Howell,Angela Ju,Karine Manera,Armando Teixeira‐Pinto,Gayathri Parasivam,Allison Tong |
| Citations | 17 |
| DOI | 10.1136/bmjopen-2020-038005 |
| Fields | Biochemistry, Genetics and Molecular Biology,Medicine |
| Open Access | true |
| OA Status | gold |
| OA URL | https://bmjopen.bmj.com/content/bmjopen/10/10/e038005.full.pdf |
| OpenAlex ID | https://openalex.org/W3091894866 |
| PMID | 33040007 |
| Type | article |
| Year | 2020 |

## Paper authors

- [Juliana Tze‐Wah Kao](https://scholariq.org/researchers/juliana-tze-wah-kao/)

## Paper journal

- [BMJ Open](https://scholariq.org/journals/bmj-open/)

## Paper primary topic

- [Genetic and Kidney Cyst Diseases](https://scholariq.org/topics/genetic-and-kidney-cyst-diseases/)

## Paper topics

- [Genetic and Kidney Cyst Diseases](https://scholariq.org/topics/genetic-and-kidney-cyst-diseases/)
- [Prenatal Screening and Diagnostics](https://scholariq.org/topics/prenatal-screening-and-diagnostics/)
- [Cystic Fibrosis Research Advances](https://scholariq.org/topics/cystic-fibrosis-research-advances/)

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Source: ScholarIQ — public research metadata, principally OpenAlex. See https://scholariq.org/sources/ for provenance and https://scholariq.org/methodology/ for what these figures mean.