# Design and Basic Characteristics of a National Patient-Powered Registry in ADPKD

**Type:** Papers  
**Canonical URL:** https://scholariq.org/papers/design-and-basic-characteristics-of-a-national-patient-powered-registry-in-adpkd/

## Facts

| Field | Value |
| --- | --- |
| Author Names | Elise Hoover,Ronald D. Perrone,Chris Rusconi,Beverly A. Benson,Neera K. Dahl,Berenice Y. Gitomer,Amy Manelli,Michal Mrug,Meyeon Park,Stephen L. Seliger,Milind A. Phadnis,Nadeesha Thewarapperuma,Terry Watnick |
| Citations | 7 |
| DOI | 10.34067/kid.0002372022 |
| Fields | Biochemistry, Genetics and Molecular Biology,Medicine |
| Open Access | true |
| OA Status | diamond |
| OA URL | https://doi.org/10.34067/kid.0002372022 |
| OpenAlex ID | https://openalex.org/W4281398364 |
| PMID | 36176661 |
| Type | article |
| Year | 2022 |

## Paper authors

- [Michal Mrug](https://scholariq.org/researchers/michal-mrug/)
- [Ronald D. Perrone](https://scholariq.org/researchers/ronald-d-perrone/)
- [Berenice Y. Gitomer](https://scholariq.org/researchers/berenice-y-gitomer/)
- [Stephen L. Seliger](https://scholariq.org/researchers/stephen-l-seliger/)
- [Terry Watnick](https://scholariq.org/researchers/terry-watnick/)

## Paper funders

- [PKD Foundation](https://scholariq.org/funders/pkd-foundation/)
- [National Center for Advancing Translational Sciences](https://scholariq.org/funders/national-center-for-advancing-translational-sciences/)

## Paper journal

- [Kidney360](https://scholariq.org/journals/kidney360/)

## Paper primary topic

- [Genetic and Kidney Cyst Diseases](https://scholariq.org/topics/genetic-and-kidney-cyst-diseases/)

## Paper topics

- [Genetic and Kidney Cyst Diseases](https://scholariq.org/topics/genetic-and-kidney-cyst-diseases/)
- [Dialysis and Renal Disease Management](https://scholariq.org/topics/dialysis-and-renal-disease-management/)
- [Biological Research and Disease Studies](https://scholariq.org/topics/biological-research-and-disease-studies/)

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Source: ScholarIQ — public research metadata, principally OpenAlex. See https://scholariq.org/sources/ for provenance and https://scholariq.org/methodology/ for what these figures mean.