# Measuring health-related quality of life in patients with rare disease

**Type:** Papers  
**Canonical URL:** https://scholariq.org/papers/measuring-health-related-quality-of-life-in-patients-with-rare-disease/

## Facts

| Field | Value |
| --- | --- |
| Author Names | William R. Lenderking,Milena Anatchkova,Robin Pokrzywinski,Anne Skalicky,Mona L. Martin,Heather L. Gelhorn |
| Citations | 52 |
| DOI | 10.1186/s41687-021-00336-8 |
| Fields | Biochemistry, Genetics and Molecular Biology,Economics, Econometrics and Finance |
| Open Access | true |
| OA Status | gold |
| OA URL | https://jpro.springeropen.com/counter/pdf/10.1186/s41687-021-00336-8 |
| OpenAlex ID | https://openalex.org/W3186921451 |
| PMID | 34283357 |
| Type | article |
| Year | 2021 |

## Paper authors

- [Mona L. Martin](https://scholariq.org/researchers/mona-l-martin/)

## Paper journal

- [Journal of Patient-Reported Outcomes](https://scholariq.org/journals/journal-of-patient-reported-outcomes/)

## Paper primary topic

- [Genomics and Rare Diseases](https://scholariq.org/topics/genomics-and-rare-diseases/)

## Paper topics

- [Genomics and Rare Diseases](https://scholariq.org/topics/genomics-and-rare-diseases/)
- [Health Systems, Economic Evaluations, Quality of Life](https://scholariq.org/topics/health-systems-economic-evaluations-quality-of-life/)
- [BRCA gene mutations in cancer](https://scholariq.org/topics/brca-gene-mutations-in-cancer/)

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Source: ScholarIQ — public research metadata, principally OpenAlex. See https://scholariq.org/sources/ for provenance and https://scholariq.org/methodology/ for what these figures mean.