# Quantifying the impact of symptomatic acute hepatic porphyria on well‐being via patient‐reported outcomes: Results from the Porphyria Worldwide Patient Experience Research (<scp>POWER</scp>) study

**Type:** Papers  
**Canonical URL:** https://scholariq.org/papers/quantifying-the-impact-of-symptomatic-acute-hepatic-porphyria-on-well-being-via/

## Facts

| Field | Value |
| --- | --- |
| Author Names | Amy K. Dickey,Kristen Wheeden,Desiree Lyon,Sue Burrell,Sean Hegarty,Rocco Falchetto,Edrin R. Williams,Jasmin Barman‐Aksözen,Marc DeCongelio,Alison Bulkley,Joana Matos,Tarek Mnif,Jordanna Mora,John J. Ko,Stephen Meninger,Stephen Lombardelli,Danielle Nance |
| Citations | 19 |
| DOI | 10.1002/jmd2.12343 |
| Fields | Biochemistry, Genetics and Molecular Biology,Medicine |
| Open Access | true |
| OA Status | gold |
| OA URL | https://onlinelibrary.wiley.com/doi/pdfdirect/10.1002/jmd2.12343 |
| OpenAlex ID | https://openalex.org/W4306722613 |
| PMID | 36636593 |
| Type | article |
| Year | 2022 |

## Paper authors

- [Marc DeCongelio](https://scholariq.org/researchers/marc-decongelio/)

## Paper journal

- [JIMD Reports](https://scholariq.org/journals/jimd-reports/)

## Paper primary topic

- [Porphyrin Metabolism and Disorders](https://scholariq.org/topics/porphyrin-metabolism-and-disorders/)

## Paper topics

- [Porphyrin Metabolism and Disorders](https://scholariq.org/topics/porphyrin-metabolism-and-disorders/)
- [Heme Oxygenase-1 and Carbon Monoxide](https://scholariq.org/topics/heme-oxygenase-1-and-carbon-monoxide/)
- [Folate and B Vitamins Research](https://scholariq.org/topics/folate-and-b-vitamins-research/)

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Source: ScholarIQ — public research metadata, principally OpenAlex. See https://scholariq.org/sources/ for provenance and https://scholariq.org/methodology/ for what these figures mean.