# SATURN: assessing the feasibility of utilising existing registries for real-world evidence data collection to meet patients, regulatory, health technology assessment and payer requirements

**Type:** Papers  
**Canonical URL:** https://scholariq.org/papers/saturn-assessing-the-feasibility-of-utilising-existing-registries-for-real-world/

## Facts

| Field | Value |
| --- | --- |
| Author Names | Luca Sangiorgi,Manila Boarini,Marina Mordenti,Victoria Wang,Ingunn Westerheim,Rebecca Skarberg,Maria Cavaller-Bellaubi,James Clancy,Rafael Pinedo‐Villanueva,Evert Jan Van Lente,Mario Marchetti |
| Citations | 2 |
| DOI | 10.1186/s13023-024-03341-4 |
| Fields | Biochemistry, Genetics and Molecular Biology,Nursing |
| Open Access | true |
| OA Status | gold |
| OA URL | https://link.springer.com/content/pdf/10.1186/s13023-024-03341-4.pdf |
| OpenAlex ID | https://openalex.org/W4402491107 |
| PMID | 39267100 |
| Type | article |
| Year | 2024 |

## Paper authors

- [Luca Sangiorgi](https://scholariq.org/researchers/luca-sangiorgi/)
- [James Clancy](https://scholariq.org/researchers/james-clancy/)
- [Victoria Wang](https://scholariq.org/researchers/victoria-wang/)
- [Rafael Pinedo‐Villanueva](https://scholariq.org/researchers/rafael-pinedo-villanueva/)
- [Mario Marchetti](https://scholariq.org/researchers/mario-marchetti/)

## Paper journal

- [Orphanet Journal of Rare Diseases](https://scholariq.org/journals/orphanet-journal-of-rare-diseases/)

## Paper primary topic

- [Connective tissue disorders research](https://scholariq.org/topics/connective-tissue-disorders-research/)

## Paper topics

- [Connective tissue disorders research](https://scholariq.org/topics/connective-tissue-disorders-research/)
- [Dermatological and Skeletal Disorders](https://scholariq.org/topics/dermatological-and-skeletal-disorders/)
- [Vitamin K Research Studies](https://scholariq.org/topics/vitamin-k-research-studies/)

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Source: ScholarIQ — public research metadata, principally OpenAlex. See https://scholariq.org/sources/ for provenance and https://scholariq.org/methodology/ for what these figures mean.